railenthe: (Fabulous As Usual)

Let's start with…well, how the hell does one describe THIS?

 

Yesterday I had a doctor's appointment.

Yes, I realize it seems that I start every other entry with that phrase, but I have a lot of doctors, and therefore there are a lot of appointments to be had half of the time. And I have to work to keep them all straight sometimes. It's a good thing that three of them are in the same building, or there would be some trouble. Anyway, the usual happened—poke, prod, measurements, weight's high, blood pressure's…actually, THAT was alarmingly low that day. We're keeping an eye on that.

I've mentioned once or twice that there's a problem with my system—peripheral neuropathy, that thing where your body's nerves are just sort of fried, misfire, and in general HURT A LOT even without provocation. The problem is, we couldn't figure out why it was happening, because I'm not diabetic. I don't have rheumatoid arthritis. I don't have MS. I don't even have your basic pernicious anemia, the B12 deficiency that would ALSO cause the problems I've been putting up with.

The last few months have been a game of Dr. House—work with a list of ideas, throw ideas at the list, throw as many medications as my constitution will allow at it, and see if it will work. Everything that we did that approach with had some problems with it—the annoying one, the time we thought it was shingles (excuse me, the time we HOPED it was shingles), the medication gave me the worst nosebleeds, and I had to drop it like a hot potato. It was unpleasant. What was MORE unpleasant was the fact that it took three instances of elimination process—dropping everything else I was taking at the time—to uncover it.

*record scratch*

I don't recommend that, especially if you're on a crapton of head-meds. It will Fuck You Up if you don't know what you're doing.

*music resumes*

Anyway, back at the doctor's office, I explain the NEW annoying crap that my system's been doing, plus the return of the stomach ulcer and the havoc it's wrought on my system in the interim. As I'm explaining the new neuropathy stuff, the doctor explains that Ulcer 2: Electric Bugaloo is because—LUCKY ME—I have severe IBS, and anything that could irritate my gut will therefore come with a free dose of the It Gets Worse trope. In my case, that means the ibuprofen that I had to take after the time I got shot wrecked my stomach a bit more hardcore than it would have otherwise. All I really can do right now is avoid any stomach irritants until it heals.

Oh, and THAT'S the good news.

Next thing that happens, doc orders me to stretch out on that cold table thing and starts prodding at places
To my shock, EVERYTHING IS RAW. (Especially the ulcer zone.) The bad leg goes twitchy when he gets to it, just like it did at the neurologist's office, which I explain when he jumps—it's a fairly violent twitchy, like if everything in the leg was a joint and he hit all of it at once with one of those reflex-hammer-things (I have no idea what those things are called).

It's at this point that the doctor informs me that now we KNOW what we're dealing with, and that there is no way my insurance is going to cover these medications.

"What are they?"

"Gabapentin, Neurontin, that sort of thing."

Fuck, I think. "That sounds like fibro meds."

"If I were you, I'd think about filing for partial disability, or medical, both if you can manage it."

Fuck, I think again. "What if I did and it didn't work?"

"Keep at it, make'em tired of seeing you, and as SOON as you even get a MAYBE," he says, "get back in here, because if we can't get this managed, it WILL get worse."

"Ain't gotta tell me twice."

So, what Friday boils down to is this: the neuropathy diagnosis was an UNDER-diagnosis with a dose of optimism, hoping that it WASN'T worse than that. What we're actually dealing with is fibromyalgia, which is a step ABOVE your garden-variety neuropathy—for one, it doesn't take the diabeetus to show up. Medicine knows jack shit about it, or what causes it, or why it hits who it hits. It doesn't kill, but boy will it make your life hell.

But there is an upside:

railenthe: wtf!Cloud (wtf)
Still alive.

On meds again.

Double ear infection.

Gotta love my luck.

Got a ridiculous idea that may involve an AU in which Tira from Soul Calibur and Kefka meet.


...yes I realize that is NOT SAFE FOR ANYTHING.
railenthe: (Default)

Actual content--interesting things, 100 Things, challenges, fic, original content, basically me NOT being a reclusive dick--will return on Saturday, October 19th.

Why then?

That's a day after I get back from my NEXT doctor's appointment.

The fact is, things keep getting worse. My leg has flared to the point where it feels just like the beginning, the muscle having wasted to the point where it is visibly thinner than the other leg. My arms and legs are a searing, burning pain throughout half of the day, my eyes are a painful, scrapey mess, and--the most annoying thing right now--motherfucking ESTROGEN. My brain is so scrambled, it's like the brainzaps are the norm now and sudden bursts of clarity are the brainzaps now. Friday, I'm hoping to get some answers.

I WILL answer to comments dropped here--[personal profile] kuro_pantsu, we need to work on a schedule for braaaaaaaaaains the thingy, and I figured out why my brain couldn't figure two things at once--that cocky bastard WAS a vet--FOR THE OTHER GUYS.

[personal profile] alkonost_storm, when I get back, we can eenie-meenie-minie-moe any RP to start up again and I am NOT allowed to argue. (TL;DR--I'm your bitch for the evening!)

EVERYONE ELSE whose handles I haven't memorized? SEND WHITE MAGES. ALL OF THE WHITE MAGES. EVEN THE ONES THAT AREN'T SO GOOD AT IT.

railenthe: (Default)

I know I’ve been a little antisocial lately, so here’s a friendly fennec fox to break the ice.

Anyway, I got to the doctor today, and told him that yes, I want the Topamax for my migraines because it’s making me functional; yes, I know that it’s not a good idea to take medicines prescribed to someone else; yes, I was taking the risk anyway because otherwise I was intentionally overdosing myself into a torpor to get a modicum of rest; and yes, I know there would be bloodwork involved and GUESS WHAT, I’m already fasting so come at me doc-bro.

I also explained the annoying as hell blisters that I’m getting in my mouth, the odd lesion/laceration that’s cut its way around and into my cheek outside in, the weird-ass blisters and raw areas, the total numbness that my feet and arms are getting, and the fact that three hours of last Saturday went missing. Oh, and the stupid knee, and waking up and my leg being as responsive as a log.

We’re looking at a couple forms of anemia to be the GOOD!bad news that we find. I say that because the OTHER thing that everything matches up with IS IN FACT LUPUS and we’re doing all this blood work to actively attempt to rule THAT out.

I’m thinking protein shake then bed.

railenthe: happy OMG snake (OMG snake)
Which means I am going to have to take a bit of time to adjust to it. The new stuff wrecks my appetite (seriously, I have yet to be actually hungry) and I'm sleepy as fuck.

But I don't even have a low grade headache. At all.

Like... nothing. At all. Zip.

So I'm going to enjoy that for a while.

Hmm...

Aug. 7th, 2013 07:27 am
railenthe: (Default)
According to my pops I've lost a noticeable amount of weight since Margarita Mondays (family gets blazed together) started.

I'm guessing it's because I've finally found a solution to the leg and migraine pain. I didn't notice: staying off scales until I can afford one that doesn't come uncalibrated when barometric pressure changes.

I have been feeling a hell of a lot better. Even the near constant vertigo and nausea has let up—no more going 15+ hours without food then eating everything at once.

I've been conflicted—I mean, until a month ago I was a teetotaller where this herb was concerned, and now, it's like my world's been flipping right side up—you know, because of the nausea fix.

I'll figure it out later. Right now I'm going to enjoy not being in pain.
railenthe: (Default)
Internet bill. It's slightly a day late.

Actually probably slightly more.

This is a phone post.

In my defense, the paycheck that was supposed to cover it is late.

I'll be back this weekend!

Update:

Jun. 6th, 2013 09:23 pm
railenthe: (Default)

Damn it, body, you had ONE JOB.

 

I have exactly one plant allergy, and that is to juniper pollen. If juniper pollen comes into contact with my skin, it looks like I’ve run face first into sandpaper that’s been used to make lovely floral arrangements of poison sumac. I found out about it this one time when I was chasing my puppy down for a bath.

 

As you could imagine, if it gets into my windpipe, hell ensues.

 

Between the ice pick headaches, sinus headaches, and that infernal juniper pollen, my mood’s been so bad that I have to avoid people. Can’t breathe, head’s going kaflooey, nothing’s getting done…at least I can do something about the last one of those. I’m drinking colloidal mineral water once a day for my headaches; my aunt recommended it, and for the last couple days it’s been a little bit better. I mean, mineral deficiency? With the size of the multi I take, it never would have occurred to me to even think of that.

 

Ooh. Shiny.

 

The Solstice is on the 21st this year. While the intention was to have my ocarina replaced by then, I decided that there were a couple of things that I wanted a little bit more at this point—also, I don’t NEED a new oc until the Winter Solstice—I’m counting on there being some kind of winter sale going on.

I’m also trying to stock up on consumables. Specifically, vape stuff. I got my grubby little mitts on a pair of new accessories, and I have my eye on two herbals.

 

Uh…the projects?

All projects will be resumed when and ONLY WHEN my health is squared. I have five doctor’s appointments in the span of four weeks.

railenthe: (We're screwed.)

OK. The hell.

I’m burning up.

Decided to go easy with dinner. Just some broccoli. Maybe a hotlink. Nothing fancy. I’m burning up.

Get up to discover that the apartment is, in fact that yes, it is that damn hot.

Too hot to think. Call me when slow-moving clipper…er, clips.

To make up for missing Friday’s post, 100 Things AND LTTP LP both go up tomorrow, even if it means I have to go to Starbucks to do it.

railenthe: (*banghead von Karma*)
The outlet and my A/C are both totes fried. I'm not going to be able to stay in my apartment for any considerable length of time for...well, probably a considerable length of time. I'm going to have to put a bit of cleaning work in every day that I can to get the place looking decent enough that I don't want to bash my head in, but that's going to take a while as well.

I'm hunting a place to camp.
railenthe: (Tired)

I know, I know.

 

I swear it.

 

I do.

 

But, before I do, a bulletin.

 

I’ve begun a Wordpress.  You’ll find it here.

 

It differs from what you’ll see here in that it’ll be quite a bit more *resists the urge to loudly PFFFFFT* professional than what you see here.  I’m not leaving LJ—not by a long stretch—but as a final, polished draft inches closer, I realize that it’s time that I posted a little sign over on saner properties—you know, BEFORE someone attempts to ape my name or something.

 

That’s right: the madness is safe.

 

Things won’t be super-stiff over there—I’m not going to turn into Mr. Stiffhorns himself.  But I’m going to be making a concerted effort to be more coherent.

 

Follow if you like.  I’d really appreciate it if you did.  :3

railenthe: (*sweatdrop*)

Note:  You might see me twice today.  I got writing-related ranting to do later and I’d like to keep the srs (-ish XD) separate from this lolz.

 

Running errands in the deadQUICKLY! TO THE RANTMOBILE )

HAI

Dec. 13th, 2011 11:01 am
railenthe: (TEA)

I CAN TOTALLY EXPLAIN MY ABSENCE.

 

Yesterday was my doctor’s appointment.  I looked my doctor right in the eye and told him I was FREAKIN’ FED UP with the pain in my leg and something more effective needed to be done.  A look at the MRI showed that right now nothing can be done surgically, which I was actually counting on—I’m willing to go under the knife if it will shut this thing up.  But at the same time, he looked at the MRI results again, gave both those and me a “Wait, WTF?” look—

 

You know, I get the “Wait, WTF?” look from doctors a lot now when I bring in test results now… )

GUESS WHAT

Oct. 17th, 2011 09:04 am
railenthe: (AWESOMEFACE)
OMG

BIG INTERNET
BIG INTERNET
BIG INTERNET

...I suppose I should explain

(PLEASE DO)

WE GET SIGNAL.

MAIN INTERNET TURN ON

NOW IF YOU'LL EXCUSE ME I HAVE TO CLEAN MY OVEN AND DO MY THRICE-DAMNED LAUNDRY.  …I'M RATHER ATTACHED TO MY ONLY PAIR OF WARM SOCKS.

EDIT:  http://www.capsulecomputers.com.au/2011/10/tiger-bunny-to-receive-english-dub-from-viz-media/

this this this this this this this this this this— *ad nauseam*

PEACE ^^;

Sep. 20th, 2011 12:44 pm
railenthe: (AWESOMEFACE)

The return home from work yesterday began as it usually does: with a glance at the elevator number and a decision whether or not to get my mail.As you may realize, Mail Day, like Laundry Day, can be a very dangerous day. )

HERPA?

Sep. 18th, 2011 12:49 am
railenthe: (AWESOMEFACE)

Kind of a fake update, but the upcoming work day means that there won't be much of me.  What with it being Sunday, that is.

Thus, guess what?  This!

Yep.  Fic.
HOPE YOU ATE FIRST.

railenthe: (Squee!)

Detail the Bathroom: 1/1
Unclutter the Bed, Sofa, and Chair: 0/1
Clean the Stove/Oven:  0/1
Clean the Kitchenette Area:  0/1
Clean the Home Altar Area:  0/1

 


Now that the unimportant shit is detailed, on to something important:

 

FIRST IMPRESSIONS OF FFIX.

OH GODS WE JUST CRASHED )

EDIT:  9:11 PM CDT.

 

I ought to explain my offline-ness here:

 

I’ve managed to catch a bug of some sort.  I got one ear whistling, one ear just not registering at all, laryngitis, and my sinuses are exploding on me.

 

I’d assume head-cold if it weren’t for the fact that I don’t get ear issues with a head-cold—and I’ve been hearing things wrong/not hearing them at all for the last day and a half.

 

If neither one has popped by tomorrow afternoon I’m seeing a doctor.

 

Now, where’s the Sudafed…?

railenthe: (Grr arg *stress'd*)

With the issues that LJ has been facing—the DDoS-es—I’ve been able to get my muses to work on things.

 

Also Tiger & Bunny.

 

Porn chair’s second appearance in mere moments…

 

Dragon Kid’s a bokkuko…

 

PORN CHAIR…

 

BUNNY’S THAWING OUT?!

 

I should be asleep but I want to watch one more…

____________

12 hours later:

 

Stayed up later than I intended.   Caught another ep.  Woke up with ease, surprisingly.

 

Got stuck doing laundry at work again.  Overloaded on heat.  Trying to sleep off a migraine now.

 

ALSO THE PILOT LIGHT WENT OUT WTF.  The entire apartment smells of gas.  Which is why this update is from the hallway.  By the time it’s posted I might be able to sleep in this apartment and even wake up afterwards.

 

…just the same I better have a pre-nap Bacchus-D to prime my system for the necessary “GET THE FUCK BACK UP” it’ll need.

railenthe: (Happy camper)

Because it will be much easier, I’ve decided to have a master journal for my fics.  I’ll still post here, but…well, I took a good hard look at the tags I’ve accumulated over the last six years and it would appear that some housekeeping is in order.

 

That’s bad news for me.  I HATE doing maintenance like this.  Guess that means I should have been on top of that from jump, ne?  I’ve got work to do.

 

The good news:  Even with my writer’s block, I’ll be making sure that things never get so disorganized again.  Meet what will become the master list of my writing, Conchordia.

 

Now, to stare at a blank word processor screen as it mocks me.

EDIT:  9:34 PM:

Or, you know, to just watch my right arm spaz out on its own, listen to a whistling noise in my right ear, and feel my jaw start to slowly, totally lock up.
I LOVE HAVING TMJ Disorder.  NOT.

…at least it isn't as bad as my mom's was.  Of course, that ain't saying much because you could hear her teeth-grinding and jawbone-pops from a room over.
I'm taking meds now and crashing, kk? 

railenthe: (TEA)
 This is just a quick update, live from Acen '11 in Chicago!

There's a surprisingly HUGE amount of swag and cosplay photo-caps in this one! At last count--and we're only two days in--I'd gotten up to 200!
I'll be getting my crap together and making a huge post encapsulating the events and the madness, but for today, I merely stop by and say HAIIIIIIII.

Next stop! Nation-tan hunting!
WHERE ARE YOU RUSSIA? Kolkolkol....

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