railenthe: (Default)
6:44 pm.

I don't know what's wrong.

My blood sugar keeps crashing out of nowhere. This basically results in me passing out where I stand (or sit, or lay.) I take precautions, but none of them have stopped it. Most recently I got acquainted with the floor at the grocery store. If it weren't for a good Samaritan taking me home I would have been in serious trouble.

I tire of this. It happened four times last week.

This is probably more than just a blood sugar issue.

I see the doctor Wednesday. I might get answers, I might not. I'm seriously hoping it's not something bad.
railenthe: (Default)
That was a scary one. I'll update for real on Tuesday night. In fact, I'll set an actual reminder on my phone for it.

Whoa dude.

Dec. 3rd, 2018 11:31 pm
railenthe: wtf!Cloud (wtf)
I had a full out thing planned but it flew out of my head when I saw something today.

Dissidia is ten years old.

Ten.

Like...how'd that happen? Seriously, how'd that happen? Where did the time go? How has it been this long already?

Damn, I feel old.
railenthe: (Default)
Shortly after the season began I received news that my uncle had died. The funeral was yesterday. Couple this with nightmares about my increasing disability and it's been a rough week.
railenthe: (Default)
 It's been a week since my last dose of the medication that helps with my situational claustrophobia ran out. It was serving double duty as a fighter against my cluster headaches. Since then, I have had three cluster headaches and one closed space panic.

Homebrewing and all the options that it gives me have become a hyperfocus, yanking me out of my head and providing a delicious treat on top.

The Cardinals failed to make the playoffs, making slow season at work start sooner than expected.

And the lack of drive to write continues.

I'll have to work my way out of that hole.

Security at the building is getting a revamp, with new locks for everybody.

And I'm head deep in three classic anime watch parties — Gundam Wing, Saint Seiya, and Jojo's Bizarre Adventure.

It's interesting around here. 
railenthe: (Default)
I wouldn't turn down money though lol.

It's  been hectic. Got rid of the bugs. My Outlook account is buggin'.

My doctor discontinued my gut medicine and it's like $70/month for a month's supply if he doesn't fix it.

There is still a gaping gouge in my ceiling.

I dislocated my knee seven times last month. The good knee.

But I'm going to try to write again. I fell into this...hole, and I wasn't writing. I haven't been able to get it going. But I'm going to do it. I'm going to push forward and write again. Cooking, photography, and writing are the things that make me happy, and I haven't been doing any of them. But I'm going to change that starting now.
 
It's time to get moving.


...ps, if you want to feed the starving artist, feel free to toss a few at. $20 feeds me for a week with this injured esophagus.
railenthe: (Default)
I have chills from my pain, and the herb that I use in my personal medicine has been scheduled, and is now illegal to own, obtain, or use in its place when my physician is being an assistant and dragging his feet on a renewal of my refill.

The Pain is like a crosscut saw, below a rib as if looking for something to remove, then realizing that it's made a wrong turn and curving down and sawing on the dotted line that is my hernia scar.

I can't focus. I can barely function.

There are things I wanted to do today. I did none of them.

All because I have not been able to get my side fixed.
railenthe: (Default)

Pestilence Day… I don't know. Too long.


My “WTF is this Weather I'm stuck in” (for three hours in a laundromat) vine got 2.5k views. Six of us were in there, rocks and branches were flying, and a door kept banging open despite our efforts.


Still the safest place to be.


The power went out four times. I had to restart my dryer twice. I went out from exhaustion… It might have been three times. I distinctly remember being out when the power was, and back when it was once. Pills were missed. Meals were missed. Returning to the apartment—I'll advised, but the only physically possible route—resulted in a SPECTACULAR splat onto the floor, with only the package of sheets I'd bought to cushion my head. I managed to get my sleep pouch out long enough to splat into it.




Two hours into splat, I realize I am so dizzy that I can't move. Getting out is not possible. Dinner is a vending machine cupcake. And I'm in enough pain that this is enough.


I'm heavily medicated right now. Sleep is soon.

railenthe: (Default)
 On Tuesday, I had to wake up at what a relative calls “ass o'clock in the AM” to go to an appointment. It was an EEG, to get to the bottom of my migraines. So I started the day getting little electrodes taped to my scalp and forehead—about 22 of them total—and then two clamp style on my wrists—and then plopped into this chair into a dark room. They were going to do a bunch of tests to measure what was going on in

 

Oh it gets better. That got followed by this...this thing.

 

“Um, what is that?” I asked, pointing at the thing that looked like it was part of GlaDOS.

 

“It's a light. I need you to close your eyes, and it's gonna blink a lot.”

 

There may or may not have been a long “nooooooooo” from me. Blinky bright flashy lights close to my eyes make a weird noise and make me twitchy.

 

And this went on for...I don't know how long. All I know is my face, shoulder, and part of my leg went completely twitchy and I was told to unclench my jaw once or twice. (Couldn't do anything about it. Reflex. Twitchy means clampy.) By the time the blinky-horrible-light was gone, I was dizzy and headachey and sick. And still twitchy.

 

Fun fact: apparently migraines aren't supposed to do that.

The next place I had to go was beyond awkward. It STARTED awkward when security had to be called on a very public fight in a bus stop. And the bus was speeding. By the tine I got to the place I had to get directions, but apparently I wasn't ready for the exam.

 

Let's just say there was enforced drinking of water and the awkward discovery that, despite an intake of over a gallon of water a day, I am severely dehydrated. We skip that part of the test after three attempts and 45 minutes of waiting we get to the second part of the ultrasound.

 

There's this...thing that gets SHOVED and PRODDED. And a lot of asking about where the pain is and where it has been and where it's been moving if it's been moving. We're looking for two things here: the cause of strange inflammation and this obstruction we can't explain.

 

By the time that one is over I've been moving since six in the morning and haven't eaten since...a quarter to seven in the morning. It's a trip to fast food place before home.

Next week it gets interesting again. We got the followup from the ultrasound, and a nerve conduction test. The neurologist who thinks that the migraines might actually be seizures also thinks that the neuropathy that I've been having could be something else—like lupus or MS—and he needs to test the functionality of my nerves to be sure. In fact, he thinks that my GP has been irresponsible with his throwing around of the shingles pill and the nerve drugs without sending me to him at some point or another.

 

A week after that, I got an ultrasound of MY LIVER.

 

Then I get to enjoy something that I'm apparently a few years overdue for thank to family history: a mammogram. I'm losing a lot of work to scan days and recuperating from scan days.

 

It's beginning to look a lot like fuck this.

railenthe: (Default)

Sitting at an improvised chair revising a chapter. It was 1:30 in the morning, prefaced with a text message of simplest nature: "Are you up?"



Nothing remains
We could run
when the rain slows
(--from Sunday)


On his birthday, David Bowie put out an absoultely smashingly excellent album, titled unpronounceably with a graphic but translateable as Blackstar. He celebrated his sixty-ninth birthday in festive fashion, we heard. I excitedly planned on getting that album in hard copy—struggle season be damned.

That was on Friday.
in which I am not particularly put together, fair warning )

railenthe: (Default)
I had two things: the fortune for my old man to be understanding, and the misfortune to come down with a stomach bug.

As we all know by now that is the worst thing for ME to be coming down with, with my history.

It's madness.

It's about a week before my neurologist's appointment. My paperwork is missing. It's been missing or a month. I have no fucking clue what I did with it. I've looked for about three hours every day, giving myself a pounding headache each time. About the only productive thing that I've done is I've cleaned underneath the stove.

Btw, moving a stove when you're ill? I don't recommend it.

They may be increasing my rent. I haven't heard a damn thing since the interview earlier this month. I had 15 hours on my last paycheck. (Does not compute.) But my food stamps got turned back on!

At some point, I'm going to break down the shiny things that have happened over the course of the year. For all the awful, there has been some nice.

But right now...I need to attempt another food and electrolytes.
railenthe: (Default)
 I am having some horrible symptoms. Symptoms that I recognize.

These are not bugs.

These lights are not there.

That noise came from inside my head.

These muscle spasms will not stop.

It’s that thing. That thing where the thing starts off with a high-level aura that makes me think it’s going to be a migraine, but then, without warning, turns into this thing that makes me feel like my bones are breaking and that maaaaaaaaaaaaaaybe I’m going to die from it.

It hit last night and knocked me out for about an hour. I was up again only long enough to take my medicine and go to bed. I was too sick to eat.

It’s kicking in again today. I got muscle spasms in muscle groups I didn’t know were there. And I know it’s because I’m on the heavy shift at work. We got slammed with a church con of some sort that didn’t want to pay two arms and their neighbor’s leg for everyone else’s rates, we’re down a housekeeper, my vacation (paid) is shifted off two days and I’m working those two days (paid vacation days on top of the regular pay).

I’m in excruciating pain, but, uh…I think that manekineko worked.

In all my time at that place we have never been busy this time of year.

…but I’m in too much pain to do much of anything today as far as interaction.

I’m going to work on Nano while my body lets me function.

railenthe: (Default)

The thing about being really poor is that when you don't make enough money to get yourself something nice for your birthday, it's a mild disappointment. There is another thing about that fact: when you manage to make just enough to pay off all of the bills that you have that month, you still manage to feel accomplished.

This month is one of those.

I looked at this week's paycheck and for a moment felt accomplished. I made an amount of money that had a two in the leading number slot instead of a one. I felt like I was getting somewhere. Then I sat down and did the math, and realized that I hadn't had as much money as I thought.

You know, I actually don't make enough money to save money for a rainy day—or, really, even a sunny day, most of the time. There just isn't that much cushion. Especially when you live in such a situation when your rent isn't even static. Mine's about to go up for no other reason than it does: it goes up when the season gets better, so that it stays at a rate of 30% of my adjusted income. The little box that I had for my savings is going to be the thing that helps me pay the bills this month.

I'd meant it to be for something else, but that can wait for another day.

…I'd like to do something nice for my birthday, but I just don't have the money to do so.

And frankly, just getting there and wanting to still be around at that point will be enough for me at this point.

Nine days.

railenthe: (Default)
Nothing happened. Nothing bad happened. I'm still not sure how to feel. I mean I'm relieved as fuck but I just have this feeling that the other shoe is about to drop. Maybe I should take a dose of the thing, or break out the dry herb vape for the emergency stuff.

[cut here]

I spent the entire day leading up to about three in the afternoon twisting myself into an interestingly shaped knot wondering what was going to happen when I finally did what I had planned: actually coming out to family.

An unplanned, aggressive outing at work has already happened—survival was on the table at that point and I had to get out of there before something permanent happened to my head—and I took a crapton of vacation days all at once to sort things out. Part of that sorting out, I'll admit, was a "get affairs in order" sort of plan. I was honestly done.

But that was negotiated out of me. And everyone who dragged me off of that ledge (AGAIN), thank you.

But that still left one big thing.

My folks. Pops and my stepmom.

They've always been a little dismissive of things that they can't grab as proof or science up or things, and the last time I came to them with any of my problems I got a dismissive "UGH" and a "Yeah well what about JESUS" speech. I'd already decided today that if I got one of those I'd walk out of there. I was going to pack light: nothing for distraction other than what could fit in a coat pocket or seven.

The plan took a different turn han I had anticipated right off of the bat when they decided to pick me up. After spending a considerable amount of time panicking and seriously considering finishing the unholy terror of a taste that is the remainder of the whiskey I decided to just deal and go. Opportunity came about fifteen minutes into me being there: they were out of cold medicine and my nerves were wired enough to need a Bob Marley soda.

I used the walk to do it. I basically took the knife and ripped it all out there and went "HERE IT IS. THIS IS WHAT IT IS. THIS IS WHAT YOU'RE DEALING WITH." I scienced. I biologied. I anthropologied. I basically explained my nonbinary idenity and fluidity with every thing I had at my disposal, up to and including the family heritage. I'd gotten so stressd that I'd actually ended up reverting to a speaking speed that only one person alive—that man, my father—can actually comprehend. It's that thing where you don't type with spaces. likewhenyourespeakinglikethis. (Mom might've, but she's been gone for twenty years now. That's a whole nother angsty vent post.)

"And if that's a problem well there's nothing about it that I can do about it because it's been like that for years and I've only really just figured it out for myself and sorry if this wrecks things."

We stop on the sidewalk abruptly, and he gives me this—it's a RELIEVED look if you can believe it—and just says "Well it's about time you figured it out, and how about you stop worrying about it now?"

The rest of the walk was spent discussing everything that's been going on, the things everyone's going to have to keep straight (HAH. STRAIGHT.), and plans on maybe getting me a job that isn't going to physically disable me within a year's time.

He's going to make the effort.

I'm not getting disowned.

HE'S SUPPORTIVE.

And I'm alternating between trying to clean up, prepping the new TV he brought me to replace the old one that the jackass left behind, and just grabbing at Marcel the plushie elephant because I just can't with this right now.

I don't know if I can actually believe things are turning around.

It feels unreal. So unreal that even the word Big Willy Shakes invented to describe it doesn't feel like enough.
railenthe: wtf!Cloud (wtf)
Among other things.

The last few months have been ridiculous.

My fibro pills had their dose doubled. Without me seeing the doctor first. That's one thing.

A couch I had brought into replace the bed and OLD couch turned out to be infested with bedbugs. Once I got rid of the couch and got rid of the bugs, it turned out that the entire building had them and it's still  fight that is going on. It also turns out that I'm allergic to those motherfuckers, and it took prescription antihistamines and sort of breaking the usual rules to get rid of the bitey bastards.

My knees have gotten worse, probably because fibro. The pain from it has spread to my hands, making typing more difficult than it used to be.

A crack has appeared in the load-bearing wall of my apartment.

*sips tea* On the upside, I've gone an entire week now without seeing one of those little six-legged bitey bastards. It's a good sign.
railenthe: wtf!Cloud (wtf)
$3.19 after the last bill of the month. No idea if I'm making rent. Burned vacation days to make up for the ridiculous pay error. No actual vacation.

AND SOME DICK HAS BROUGHT WHAT ARE EITHER MONSTROUS FLEAS OR BEDBUGS INTO THE APARTMENT BUILDING.

BUSIEST NOVEMBER WE'VE EVER HAD AND I DIDN'T EVEN EARN MONEY.

THIS WEEK, MAN.

*Rolls redshirts to off*
railenthe: (Default)
I have them somewhere on my hard drive but can't seem to find them right now. I haven't been able to find them for a bit.

I'm going to have to do some hunting.

On the upside, I figured out what was causing me the twitch, and I cut that medication out.

I should be able to write again in a couple days when it's completely out of my system.

So. Sunday.

Apr. 4th, 2014 01:57 am
railenthe: The Guy Too Derpy for the UAE (SUPERDERP)
I'll keep it short because I'm supposed to be sleeping:

1) Taxes showed up, as did birthday funds--those with an attached rider that I MUST spend them on something leisure. Apparently I've been looking crazy and need to unfrazzle. ...I'll post pics of what that turned out to be eventually.

2) The installments on that gigantic light bill are now rolling. It's shrinking quickly.

3) You know how you can tell there's an S&M convention in town? The broken doorknobs, the fursuits in the rooms, the preponderance of non-yaoi paddles (and surprisingly the commentary that it's the yaoi paddles that are sturdier, barring you making your own) and the occasional whip that gets closed in a door. There's no pictures because photos are a gigantic no-no, but I trust your imaginations.

4) Decided to take on April Camp Nanowrimo.

5) For some goddamned strange reason started putting buffalo wing sauce on EVERYTHING. I think the estrogen titan's after me.

6) DISCOVERED THAT SENGOKU BASARA IS NOW ON NETFLIX.


OK. Now to get some sleep.
railenthe: (Default)

WARNING!

IF YOU’VE GOT A WEAK STOMACH, skip the cut. It’s a fairly graphic workday description. The TL;DR: Hours got cut because of a fairly shenanigans work situation/health situation in which orders were given to “call me off whenever the opportunity arises.”

FACT: my hours have been cut. I haven’t worked since last Sunday, right before my gigantic dick of a migraine started. (It was a doozy. Convulsions and nausea and vomiting and everything. I did nothing productive until today.)

FACT: this upcoming paycheck is going to be kind of sad.

FACT: this upcoming sad paycheck WILL do me a favor, since the aid office looks at the average of your paycheck stubs across a time frame, and a couple of them were better before this incoming one.

FACT: My tax refund is LATE and I have bills coming in to the tune of…hang on…

*stops to math*

*stops to math*

…dyscalculia (dyslexia, but with everything involving math) really sucks.

*STOPS. TO. MATH*

OK. THIS TIME I GOT IT. $86.23.

If I don’t do anything leisure-related at all payday will cover it. I don’t know what the status of any of my medications are, either, so I’m not adding that into the total either—since those are numbers that I Do Not Know.

THIS IS WHERE THINGS GET UGLY! )
railenthe: (Default)
This isn't on the official list of 100 Things because I hadn't honestly had to think about it, but yesterday and today, it hit me that

I SERIOUSLY LOVE YOU GUYS.

I mean, you've gotten me out of some seriously tough mental spots over the years, that's to be said, and even if I'm silly and goofy at times and don't always make a whole lot of sense you're always there.

And now you've gotten me out of REAL tough spot, the threat of being on the streets again with this crazy chunk of shenanigans with work and rent and medical crap.

I love all of  you and the only thing that would make it more perfect would be if this stress-related nosebleed would kindly fuck off sometime soon. <3

January 2025

S M T W T F S
   1234
567891011
12 131415161718
19202122232425
262728293031 

Syndicate

RSS Atom

Things ze rants about the most

Style Credit

Expand Cut Tags

No cut tags
Page generated Jun. 24th, 2025 06:54 am
Powered by Dreamwidth Studios