railenthe: (Default)

The Barnes Er.




The wait was short in registration, long in seeing a bed. My pain level went from annoying to “periodic knock out and frequently disorientation.” The wait went on so long that my father had to go start his shift at 1 that morning.


By the time I got to a room I was so disoriented from pain they had to throw something into my IV to render me coherent, and I described the pain, the bleeding cystic mass, the torn abdominal muscles, and the sickness I felt on sitting up. Somewhere in the middle of this an IV drip was started, freezing cold and stupefying. I managed to describe how the pain and nausea kept me from eating for two days and how despite that long of no intake my fasting glucose level was 103 as read in an ambulance.


I was told that everything that could be done had been done, and in my current state the recommended ultrasound was not possible (one needs to be awake for that in its entirety), and without the ultrasound nothing could be done about the bleeding mess—though I was told to avoid aspirin until further notice…


Which means the only thing that works on my back pain is out.


Anti-nausea drugs, stacked like mad. Acetaminophen, stacked on the tramodol.


Agreement with the doctor's judgement that my pain is undermedicated. Disagreement on what to do about it.


That was as far as I got. The room fuzzed out on me along with one pain spike, and I was out.




“We didn't put anything drowsy in there.”


“Here's the thing, sir—being in constant pain is exhausting.”


I don't know how much time passed, but when I woke up they were back to the back and forth on how to manage the situation. A bag was changed. A comment was made on my dehydration. I was asked… Something. I don't remember. I remember answering “Huh?”


“Get some rest, kid.”




I wake at morning in no knowledge of where I was, exhausted, and mildly delirious. I was also given my discharge papers. I had a sense—there were no windows—that it was dawn out and I knew my father wasn't present. They offered to help call him. I thanked them for letting me sleep the pain off and not tossing me out like Memorial does, and I was wheeled to the exit, along with the seven blankets that kept me from catching a chill.


For the record he was unamused with the results. I registered just long enough to explain the why before I was out again.


Then I slept until two.




Now what?


I have to survive this long enough to take all the appointments. I've also been advised to slowly, slowly increase my sitting up (heavily medicated for nausea and vomiting, of course) with back support. I'm not supposed to push it, and after such a stretch of no food I am to EASE into solid food again, no matter how much I feel like I can eat seven giant sandwiches, so that I don't hurt myself. Continue with the Gatorade because calories in.


Just writing this has worn me out. I'm going to rest until I'm due for the late pills.

railenthe: (Default)
Today I have eaten eight chips.

In two days.

This is actually progress, not old school backsliding.

I've been sick—mostly a mechanical injury, but it complicated eating and drinking—and at some point I got a nice little kidney issue that I'm going to be taking an alarmingly named antibiotic for shortly. I'm also downing electrolytes, which has helped the fog significantly. The ER suggested I actually go for the sugary sports drinks on account of not having eaten since Sunday, try to gas up the old heals system.

Sitting up still hurts like hell. And I've misplaced the Bentyl for the ab spasms. But I'm awake and hydrating again after that ER trip.

Also, potassium heavy drinks all taste terrible. No wonder all the sugar. (Then again it is literally a salt.)
railenthe: (Default)
It seems that my ability to physically sit upright is done with by around five in the evening.

Standing upright, I can do in fifteen minute bursts (if you can call them that).

But sitting up straight does something to that muscle that not only HURTS like hell through a prescription painkiller, it completely kills my ability to breathe. As in "ADJUST NOW TO TAKE IN AIR."

We're still trying to figure out how this happened. Tore my abdominal wall.

I fucking broke my abs, basically.

I have to get up and argue with my midsection and get food now. There's a "vvtvvt" sensation under my ribs, and I've got intermittent loss of visual focus from pain. I'm not a fan.

Maybe screw cooking...
railenthe: (Default)

The novel approach my doctors are taking has basically been

  • test this.
  • test that.
  • did we test this? Test this.
  • Don't test this. We don't need to test this. This person is healthy.
  • “What the fuck do you mean they didn't test that? Send a fax right now and then make sure they send one back CONFIRMING they tested it today!” (My gastroenterologist may have had words with my GP.)
  • UH this is worrisome let's test this.
  • THIS IS NEW. So that side effect might actually be THIS thing we found here
  • But hey at least these are healthy!
  • Oh, those though? Not so much.

I've spent a third of the month in and out of medical testing. We've found nerve damage in my legs and the hip/groin (THAT one, we're not sure how it happened). We've found a not small ovarian cyst. We've found no problems with my boobs, which means I've so far beaten a family curse. The migraines are atypical and we don't know if they're seizure related, but the zappy lights do trip them. I go back in a few months.

The legs are fucked. Losing five pounds might ease the pain on them but no guarantee. But I've got six months to do that in. Three of the four doctors do not care otherwise about where my weight is.

The fourth proceeded to fat shame me and suggest that I drop to 130. The last time I was that light, I was, if you can believe it, sicker than I am now. I also had no chest. (…and no associated back problems, but hey.) However, he finally took my pain seriously and provided something for it—

And it knocks me out for six hours at a time.

I'm a fan of not being in pain, but, I kind of miss being conscious sometimes.

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